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  • Writer's pictureHeidi Renee


I am dubbing today as manic monday, or lets just say we're on the verge of a manic week.

We are less than pleased with the school district, which I know is not "new", but it seems to continue to get worse as we go along. For something this important, "last minute" efforts are not cool.

It seems that AJ's surgery tomorrow has put a wrench in everyone's plans to come and observe him. Again, let me say that we are very thankful that his current team is doing the evaluations, with the school district only coming to observe. His IEP is scheduled for early June. It seems that everyone is in a mad dash to complete their observations. Between his surgery and Memorial Day being next week, it's a mess.

So far I've been cancelled on by one staff member and deeply offended by another during a phone conversation last week. The district speech therapist and early education teacher will be coming to observe AJ at toddler group today. The school nurse, vision specialist, and psychologist all still need to observe AJ.

After toddler group we have to rush home for his TOD to come for her session, nap, and then OT later tonight.

Tomorrow is his eye surgery and other procedure. He was cleared for surgery on Friday. It should only take an hour total. We have requested to have the surgery done at CHW instead of the outpatient surgery center. Given his history, it just makes us feel a bit more comfortable. He will be in the same Day Surgery area as he was for his cochlear implant surgery. We are a bit nervous as to how he will do post-surgery, given what happened post-op after CI surgery. He will go home the same day.

He has a follow-up the next morning with his ophthalmologist the next morning (which means no toddler group-SIGH). I wasn't sure if he'd be himself enough to go to group anyways, so maybe its for the best. Thursday he has his 1 month CI follow-up/programming and Friday he has speech (which we have to go to since he'll be missing Tuesday's session due to the surgery.

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